News Flash

First Selectman

Posted on: March 10, 2023

March 10 designated as Rare Disease Awareness Day

PROCLAMATION from Fred Camillo, First Selectman 

WHEREAS, One in every ten Americans has a rare disease and over 300 million people around the world are living with a rare disease; and

WHEREAS, There are over 7,000 identified rare diseases and collectively the number of people living with a rare disease is equivalent to the population of the world’s third largest country; and

WHEREAS, Approximately eighty percent of rare diseases are genetic whilst others are the result of infections (bacterial or viral), allergies and environmental causes or are rare cancers.  And noting twenty-five percent of all cancers are rare and every pediatric cancer is rare; and

WHEREAS, Rare diseases currently affect five percent of the worldwide population and are in desperate need of research, funding and patient support; and

WHEREAS, Greenwich and Connecticut based rare disease foundations like the Golden Lights Foundation, Dana’s Angels Research Trust, Hopper-Belmont Foundation, Fibrolamellar Cancer Foundation, National Organization of Rare Disorders Rare Cancer Coalition, Connecticut Rare Action Network and others have taken a leadership role in raising awareness for rare diseases.


NOW, THEREFORE, l, Fred Camillo, FIRST SELECTMAN OF THE TOWN OF GREENWICH, do
hereby proclaim March 10, 2023 as

Rare Disease Awareness Day

in the Town of Greenwich to help raise awareness of rare diseases and encourage our residents to recognize the impact of rare diseases on families within our community and honor those in our community whose lives are currently impacted and whose lives have been shortened by rare diseases.

Facebook Twitter Email

Other News in First Selectman

flood symposium town hall sept 20 2023

Sept 29: Community Connections from Fred

Posted on: September 29, 2023
danas-angels-greenwich-point-park.jpeg

SEPT 22: Community Connections from Fred

Posted on: September 22, 2023
Golden lights foundation proclamation 9-15

SEPT 15: Community Connections from Fred

Posted on: September 15, 2023
bruce-park-historic-designation-pz-2023

SEPT 8: Community Connections from Fred

Posted on: September 8, 2023

September 17 designated as Constitution Day

Posted on: September 17, 2023
Senior and disabled homeowner tax credit guide.JPEG

SEPT 1: Community Connections from Fred

Posted on: September 1, 2023
Mothers for Others 8-18 2023

AUG 18: Community Connections from Fred

Posted on: August 18, 2023
FB Glenville Forum Monday August 14 2023-2

Glenville Community Forum

Posted on: August 14, 2023
glenville firehouse april 2023.JPEG

AUG 11: Community Connections from Fred

Posted on: August 11, 2023

July 14 designated as Bastille Day

Posted on: July 14, 2023

June 19 designated as Juneteenth Day

Posted on: June 19, 2023

May 12 designated as Law Day

Posted on: May 12, 2023

April 27 designated as Arbor Day

Posted on: April 27, 2023

April designated as Earth Month

Posted on: April 1, 2023

FEB 10: Community Connections from Fred

Posted on: February 10, 2023

January 31 designated as Mary Curcio Day

Posted on: January 31, 2023
fred camillo budget presentation to the BET

JAN 27: Community Connections from Fred

Posted on: January 27, 2023

AARP Foundation Tax-Aide

Posted on: January 23, 2023
New Parks & Rec ONEPASS

Important Park Pass Policy Update

Posted on: January 23, 2023
First Selectman's Budget Meeting

JAN 20: Community Connections from Fred

Posted on: January 20, 2023
Brothers Brook Drainage Area Project

JAN 13: Community Connections from Fred

Posted on: January 13, 2023

Community Connections from Fred

Posted on: January 7, 2023
Greenwich Avenue Lights at the end of the day...

DEC 30: Community Connections from Fred

Posted on: December 30, 2022

DEC 23: Community Connections from Fred

Posted on: December 23, 2022

Winter Storm Advisory Report

Posted on: December 22, 2022

DEC 16: Community Connections from Fred

Posted on: December 16, 2022

December 15 designated as Katie DeLuca Day

Posted on: December 15, 2022

December 16 designated as Fred Tuck Day

Posted on: December 16, 2022

DEC 9: Community Connections from Fred

Posted on: December 9, 2022

DEC 2: Community Connections from Fred

Posted on: December 2, 2022

NOV 23: Community Connections from Fred

Posted on: November 23, 2022

November 29 designated as Pat Sesto Day

Posted on: November 29, 2022

NOV 18: Community Connections from Fred

Posted on: November 18, 2022

October 25 designated as Jill Curran Day

Posted on: October 25, 2022

October 28 designated as Dan Warzoha Day

Posted on: October 28, 2022